Do you add any other information to my data?

Government departments and agencies hold information about people, which they use for routine administrative purposes. From time to time, we add information from these routine administrative records to the study data. We only do this if we have permission from you.

When you first joined the study, your parents gave permission to add information from your school records to the survey data. As part of the age 25 survey, we asked for your permission to add information from a number of other administrative records. Find out more about this in the information booklet about data linkage, titled ‘Adding Other Information About You‘.

To add information from administrative records, we securely transfer personal details (such as name, sex, date of birth, address, NHS and National Insurance number – if available) to the government department or agency, for the people who have given permission to do so. No other information about the person, or any of their answers to the surveys, is sent. The government bodies or agencies only use these details to identify the records in their systems and then send us the information from these records. Once the records are identified, your person details are destroyed. The government departments and agencies do not retain the personal details sent to them. When the information from the records is sent to us, we add it to the information collected in the study, and make it available to researchers under restricted access arrangements. Names, addresses, National Insurance and/or NHS numbers, are never disclosed to researchers.

The permissions for adding information from administrative records can be changed or withdrawn at any time, without giving us any reason. This can be done by writing to FREEPOST RTHR-TUGG-UTCR, Next Steps, UCL Institute of Education, 20 Bedford Way, London, WC1H 0AL, or by emailing the team at nextsteps@ucl.ac.uk.

We also add information, which is not about you individually, but is about, for example, the school you went to or the area you live in. Any information like this, provided to researchers, is fully anonymised and cannot be used to identify who is in the study.

Watch our video to find out more about adding other information.